There are obstacles, but we will overcome them
The good news is that there are entities that help us overcome these obstacles!
One of them is
ABRALE. The Brazilian Association of Lymphoma and Leukemia (ABRALE) has developed a complete booklet with all the
rights of cancer patients, which are provided for in Brazilian legislation, to help us in the pursuit of our rights as cancer patients.
One of these rights, which many patients don't know about, is the right to free medicines
If your doctor requests the use of a drug that is not on the SUS list, the doctor himself can make a special request for it to be provided. This request takes up to 30 days to be answered and you will receive the answer by e-mail or telegram. Medicines are usually requested directly by health professionals and picked up at specific locations, indicated by SUS in the e-mail or telegram you will receive. If in doubt, ask the hospital or outpatient clinic where you are being treated or the Municipal Health Department in the region where you live.
In cases where the medication is missing, you should contact the SUS Ombudsman or the Social Workers at the place where you are being treated.
We would like to stress the importance of following the instructions given to you by the medical team that is treating you.